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On April Fool's Day in 2014, Norman, one of the very first patients at Chris O’Brien Lifehouse, got a call from his GP. The results from his recent scan were in and he was diagnosed with stage 4 lung cancer. He was in shock. He had retired in 2006, and after recovering from a previous bypass surgery he had tried to live an active, healthy lifestyle, walking or cycling 10km every morning, followed by some laps in the water.
In a moment, the life of a loving husband, father and grandfather was drastically changed. When asked where he wanted to be referred, Norman emphasised, “Send me to the best place.” His GP referred him to the brand new Chris O’Brien Lifehouse.
After several more tests and consultations, Norman was told that he was only likely to live another six to eight months. He underwent an intense 8-hour cycle of chemo and radiotherapy for 49 days in a row, but after three3e3r3h3months, the tests showed his cancer had spread. Norman now had 23 tumours, some as big as tennis balls.
With his last bit of hope, Norman began searching for another avenue, anything that might give him a chance at treating his cancer. He’d been told about a clinical trial, but it was predicted it may only extend his life by two months and he worried about the impacton his quality of life. is family and doctors, Steven Kao and Prof Michael Boyer, encouraged him to take a chance. Norman took the leap and say “The trial really did give me some hope that I could beat this thing.”.”
Norman underwent treatment for a total of seven years, but the doses of the medication administered through his clinical trial increased and he began experiencing neuropathy, a side effect of treatment where nerves are damaged and numbness or tingling in the hands and feet can occur When the treatments stopped, Norman was warned that the cancer may reactivate but miraculously, it didn’t.
“Every day is a bit of a challenge, but I wake up and am so grateful. Before this, I didn’t realise life was so precious. I'm just about well, I will soon be three years without any treatment,” says Norman.
Now 10 years on from his first visit, Norman came in to ring the bell. It wasn’t here when he first visited and is used to celebrate milestones such as finishing treatment. On the 6th February, 2024 Norman finally rang the bell together with Dr Kao, surrounded by the amazing staff who have supported him on his journey so far. he room was filled with joy and emotion, both by Norman and all those surrounding him in that special moment.
Norman is grateful for the staff who helped him throughout his journey and whohope for him at the timeshe couldn’t. To support others in their journey and to give the gift of oope to others, Norman ecided to leave a gift in his will and become a regular giver and member of the Discovery Centre, helping to support patient care and drive research. We asked Norman what sparked him to become a donor and leave a bequest. e said “As a patient who survived, who was surviving once I got the trial, it extended my life every month, and I’m still here…the drugs, the atmosphere, there is some magic at Chris O Brien Lifehouse…the choir, someone on the piano, the research going on… Everyone should have access to the best care, to a long life, and a cure. It’s a great cause and thanks to this place I’ve been able to watch my grandkids grow up.”
Would you like to be a part of the Discovery Centre, making a monthly gift to give hope through patient care and research?
Scan the QR code or call Naomi on 02 8514 0265 to find out more.
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